LIFE CHEZ DEE

We’ve been out out. Doesn’t happen too often these days. Yes we go out, as a family, with the boys, we go out for lunch or coffees, but rarely do we get dressed up and go out … just the two of us … and we even stayed out all night! I was both delighted and privileged to be invited to a dinner dance at Derby County Football Club, by Steve Dayman, founder of Meningitis Now. Right from the day Edward died, Steve has been there for us. Steve founded Meningitis Now (or Meningitis

I sat today, as I would normally do, to write a piece. I’d got a few ideas of where my writing would take me today, but as I opened the computer, there was the face of my beautiful boy, Edward. I’d posted on social media about it being bereaved parents’ month, and written a quote from another grieving mother about what was normal after your child dies. "Normal is telling the story of your child's death as if it were an everyday, commonplace activity, and then seeing the horro

I lost my voice recently. Not physically, but it could just as easily have been. There was so much I was thinking about, experiencing, processing that I needed to write about, but for one reason or another, I felt unable to put those thoughts, feelings and emotions into my writing, or at least writing I was able to publish. I was totally lost. I know I don’t usually hold back; I’m more than aware that my writing is raw and from the heart, but I knew that the raw emotions I wa

It’s April already, and with this comes the thoughts, the build up, the feeling which permeates every bit of my being, knowing that we’re in the days approaching Edward’s birthday. What I should be doing is hiding the presents I’ve bought him, finalising party arrangements, putting aside cards which arrive through the letterbox so that all these surprises are there waiting for him to excitedly open when he gets up in the morning. But that is far from reality now. I will get u

Today is Mother’s Day. Normally I’m awakened by the boys coming into our bedroom to wake me and wish me a Happy Mother’s Day. Today I woke early, particularly early in fact, and not feeling able to nod off again, I just got up. I do actually quite like it when it’s quiet downstairs, and whilst the boys were still snoozing I got on with all sorts of chores … feeding the cats, letting them out, cleaning the litter, putting a washer load on, emptying the dryer and folding the cl

This probably isn’t the best time for me to be writing this piece. I’m angry. I’ve totally had it with people who say the most offensive things to me. It happens so often, far too often quite frankly. I’d actually just been talking with friends about some of the horrid remarks which have been said to me these last few years, and I don’t know if this conversation tempted fate, but later the same afternoon … wham! Another one was hurled at me, quite consciously and quite pointe

I’ve listened on many occasions to the positives and negatives of social media, and indeed the time spent on it. So just how much is too much? And at what point does it become an addiction? For years I was sceptical about using social media. Ridiculously unnecessary I thought. Who wants to look at what others are eating for their tea etc etc. I eventually decided to take the plunge in about 2013. I felt as though I was missing out on knowing what was going on with stuff gener

I have read, read, read and read so many pieces, articles, writings, thoughts and experiences of others’ grief. Those who are grieving parents, grandparents, distant relatives, friends, siblings, children, babies (those who were born and lived a short while, those born sleeping, or those lost before they reached term). I’ve probably focussed more on reading about those who have experience of child loss, since my experience of this has been far more overwhelming and debilitati

Losing a child is different to any other loss. My child died, and on every possible imaginable level, that is wrong. The death of a child is not something anyone is prepared for or should ever happen. As a mother, the instinct to protect your child is always there. Not being able to protect your child; or save your child from dying goes against everything that motherhood stands for. This is not the natural order of things, and goes against the normal cycle of life. Watching

I wanted to talk about Edward's place; Edward’s grave. This might seem like a strange subject to talk about, but as this is going round in my mind, and I’m in the habit now of offloading all that stuff, then this is something I need to talk about and share. Edward is buried; I couldn’t bring myself to have Edward cremated. I watched him die. I visited him daily for the two weeks until we buried him. He was beautiful. For me, it felt like I needed to have that vision in my h

How are you? A very simple question. One which is asked all the time; but one which is so difficult to answer at times. One which was almost unbearable to hear, and so unbelievably hard to answer in the days and weeks after losing Edward. It’s a question I hadn’t analysed too much until I was in a position where I felt unable to answer. How are you? It’s said so often, by so many. Just in passing … in the street, in the shops. It’s the question you want people to ask; whilst

This week it was announced that the University of Strathclyde had developed a test for sepsis; a test which would cut the time down for waiting for the results to under three minutes, rather than the 72 hours as it is currently. Fantastic I thought, another step in the right direction. Anything which cuts down the diagnosis time has got to be good. Every hour delay in the diagnosis of sepsis and antibiotic treatment given, increases the likelihood of death. Time is not on you

So this week has been all about love. How do I feel? I don’t know how to articulate a quick and straightforward answer to that. I wake up on Valentines Day and the first person I think about is Edward. Edward is the first person I think about every day in fact. Edward is ALWAYS in my head the minute I wake, and ALWAYS in my head as I drift off to sleep. My love for Edward is forever. My love for all my children is forever. My love for my children is shown in hugs, kisses and

Monday night again, and time once more to meet with those others I have joined to talk through advent, and it’s meaning today. This week was entitled “At a Distance” and we looked at family life in lockdown and the Holy Family’s isolation at the time of their son’s birth. We reflected on how Mary had to give birth far away from her family, and what this might have been like for her; and also thought about those who have had babies this year, during a pandemic, and throughout

I awoke this morning earlier than usual, probably nudged by Edward, who even though is always on my mind, was even more so today … if that was even possible. 5th December 2016 – only four years ago; feeling so long ago, and yet only like yesterday; each and every detail remembered. Vivid thoughts, memories and feelings wash over me, flood me, drown me. Without much warning, I could feel the tears in my eyes welling up and starting to pour down my face and onto my pillow as I

This week was the third one in the advent course I was attending. This week’s focus was on the theme “Travelling Light”, looking at the journey of the wise men, and again looking at the nativity story and how we can relate to this today. I had an hour or so before the zoom call started and so managed to squeeze in a walk, albeit only a brief 3 miles, with Justin. We walk, pretty much every day together, for exercise, fresh air, headspace and for time alone together. I thought

I have read, read, read and read so many pieces, articles, writings, thoughts and experiences of others’ grief. Those who are grieving parents, grandparents, distant relatives, friends, siblings, children, babies (those who were born and lived a short while, those born sleeping, or those lost before they reached term). I’ve probably focussed more on reading about those who have experience of child loss, since my experience of this has been far more overwhelming and debilitati

Those of you who follow my page may recall quite some time ago, I wrote a piece about *Edward and Raphael. Raphael’s bench is behind Edward’s bench, both of which sit underneath the magnificent oak tree in the cemetery. Today we went to the cemetery to visit Edward again. It was nice to be able to drive in, it has been so long since we’ve been able to do this as the gates have been closed to cars (unless attending a funeral) since lockdown. Although it is only a short walk up

I’ve been doing loads of sorting out lately … sorting, clearing, filing, tidying. There’s still lots more of gardening sorting to be done for me to feel accomplished, but given the inclement weather of late I’ve turned my attentions to sorting inside the house. I’ve bundles of stuff ready for the charity shop and I’ve given lots away via a local freecycle site … and it’s rather liberating that decluttering is well underway. I wouldn’t describe ourselves as hoarders by any str

It's been a strange few weeks, and Easter is no exception. No build up to the school holidays as Oliver has been schooled at home; holidays too have been cancelled or postponed; no jetting off somewhere, or packing of bags as we load up the car for a long motorway journey to our holiday cottage; no day trips planned for walks, museums, city visits, or visits to National Trust houses and gardens that we love so much. Visits to all these beautiful places put on hold, added to