LIFE CHEZ DEE

It’s April already, and with this comes the thoughts, the build up, the feeling which permeates every bit of my being, knowing that we’re in the days approaching Edward’s birthday. What I should be doing is hiding the presents I’ve bought him, finalising party arrangements, putting aside cards which arrive through the letterbox so that all these surprises are there waiting for him to excitedly open when he gets up in the morning. But that is far from reality now. I will get u

This week it was announced that the University of Strathclyde had developed a test for sepsis; a test which would cut the time down for waiting for the results to under three minutes, rather than the 72 hours as it is currently. Fantastic I thought, another step in the right direction. Anything which cuts down the diagnosis time has got to be good. Every hour delay in the diagnosis of sepsis and antibiotic treatment given, increases the likelihood of death. Time is not on you

I wanted to write about trees. I could go on and on about trees and how special they are, but today I wanted to write about some really special trees … Trees #forEdward. Trees for Edward was born in 2018. It all started at the Post Office in St Annes, me chatting to Jan, Jan wanting to help the charity in so many ways. Jan knows many, many people, as you can well imagine, and before long she’s told all those many people about The Edward Dee Fund. One of the shop owners she to

I’ve had such a lovely day today. I’m feeling rather like a great deal has been accomplished, but I’m cold … really cold. I’m naturally a cold blooded person … I’m cold most of the time if I’m honest; but when I get cold I stay cold, I just cannot warm up no matter how warm the house is when I get back. When I’m chilled to the core, the only solution to get warm is to have a bath, get in pjs, dressing gown, slippers and cosy up in a big armchair with a hot drink. Those who k

This weekend, the first ever Ball #forEdward was in full swing. I’ve been sitting today, recovering for a start, from lack of sleep, sore feet, late night, but also looking through so many fabulous photos of the event, and reflecting on what a huge success it was. Many, many months ago, Gary Fox, Oliver’s drum teacher, Head of Schools Music Service in Fylde, and drummer, singer and leader of Switched on Swing, mentioned to me that the band would love to play and support at an

So this weekend has been all about Edward again. We’ve been in a local store, raising awareness, and a group of NCS Students have been at Lytham Hall fundraising for The Edward Dee Fund too. I’d suggested to William, who is in this NCS Group, that they split up so that they could sell raffle tickets in both places, therefore reaching more people. So William, and another, joined us in Booths. It was lovely to be in St Anne’s Booths, right on the doorstep of Edward’s school, ne

Carnival Day … St Annes was buzzing. We decided to enter the charity into St Annes Carnival Parade after the fantastic comments, feedback, and indeed reception we had in Lytham at Club Day. The bikes were yet again adorned with flags, balloons, charity logos, streamers, bubble machines. We were all here kids of all ages and adults; bikes, three wheelers, prams, kids on child seats …. all enthusiastic; all wanting to be a part of our group; all raising awareness #forEdward. We

Never having taken part in the Club Day parade, and never having thought about entering the charity, I was persuaded to take part by Dickon. Dickon, for those who don't know, is a friend, and massive helper and supporter of all things #forEdward ... and indeed Club Day. I chatted with Dickon a few times, he was really keen that we should be in the parade… go on he said … it’ll be fun he said … it will be good for the charity he said … you’ll love it he said … we can go overb

So today I decided to try out Nordic walking. I’ve been thinking for quite some time now that I need to get back to getting my backside into gear and doing a bit of exercise. I’m so busy with so many things; the kids, the charity, just life in general, and its so easy to get out of the habit of exercise, and, certainly in my case, pile the pounds on too. I’ve done power walking before, well fast walking anyhow. I tried doing fast walking rather than running as I hated running